Resources

For Providers

AAP frequently asked questions on CCHD screening

CCHD Guidebook – The guide provides a comprehensive resource for CCHD screening in New Jersey.  It contains background information on the importance of CCHD screening, guidance on performing and interpreting the screen with the New Jersey recommended algorithm, evaluation of failed screens, proper reporting mechanisms to NJDOH and parent education.  Revised April, 2017. Now includes guidance for the Special Care Nursery (SCN) and Neonatal Intensive Care Unit (NICU).

Circulation 2009- AHA-AAP Statement

Center for Disease Control and Prevention (CDC): screening for CCHD for health professionals

Rapid Implementation of Statewide Mandate for Pulse Oximetry Newborn Screening to Detect Critical Congenital Heart Defects – New Jersey 2011 (MMWR)

Health and Human Services secretary Kathleen Sebelius’s letter on adding CCHD to the recommended uniform screening panel

New Jersey Department of Health (NJDOH) Newborn Screening for Critical Congenital Heart Defects (CCHD) – includes direct links to the New Jersey Recommended Screening Algorithm, Quick Reference Guide, Multilingual Parent Handouts.

Endorsement of Health and Human Services Recommendation for Pulse Oximetry Screening for Critical Congenital Heart Disease (AAP Pediatrics)

Results From the New Jersey Statewide Critical Congenital Heart Defects Screening Program (AAP Pediatrics)

Strategies for Implementing Screening for Critical Congenital Heart Disease (AAP Pediatrics)

For Parents and Caregivers

CDC: screening for CCHD

March of Dimes CCHD page

Newborn screening for congenital heart defects: information for parents
 [English / Spanish / Arabic / Hindi / Korean / Polish]

Screening, Technology, and Research in Genetics (STAR-G) fact sheet for parents