Pediatric Alliance For Lupus Initiative
The Pediatric Alliance for Lupus (PAL) initiative focuses on raising awareness and improving diagnosis and treatment of childhood-onset systemic lupus erythematosus (cSLE) among racial and ethnic minorities in three geographic locations in New Jersey – Trenton, Newark-Union, and Edison-New Brunswick.
AIM 1: IMPROVE HEALTH LITERACY
Goal 1: Increase the number of online, age appropriate, culturally and linguistically sensitive resources readily available for patients with cSLE and their caregivers.
Goal 2: Increase nationwide awareness and knowledge among healthcare providers, pediatric and adult rheumatologists (with special outreach to the target areas) of cSLE and age appropriate, and culturally and linguistically sensitive online materials in the National Resource Center on Lupus by the Lupus Foundation of America to educate and support minority cSLE patients and their caregivers.
AIM 2: ENHANCE THE MEDICAL HOME FOR CSLE PATIENTS
Goal 1: Increase the number of healthcare providers in the target areas providing an effective medical home, trained to identify, diagnose, manage, and treat cSLE.
Goal 2: Develop an American Board of Pediatrics Maintenance of Certification Part 4 Quality Improvement curriculum across the target areas to focus on early identification of cSLE; improve practice screening and assessment; anticipatory guidance; diagnose; manage; ensure adherence; and provide resources to patients with cSLE and their caregivers.
The PAL initiative was supported by Award Number CPIMP171139 from the Office of the Assistant Secretary of Health (OASH). Its contents are solely the responsibility of the authors and do not necessarily represent the official views of OASH.