Pediatric Alliance For Lupus Initiative

The Pediatric Alliance for Lupus (PAL) initiative focuses on raising awareness and improving diagnosis and treatment of childhood-onset systemic lupus erythematosus (cSLE) among racial and ethnic minorities in three geographic locations in New Jersey – Trenton, Newark-Union, and Edison-New Brunswick.


Goal 1: Increase the number of online, age appropriate, culturally and linguistically sensitive resources readily available for patients with cSLE and their caregivers.

Goal 2: Increase nationwide awareness and knowledge among healthcare providers, pediatric and adult rheumatologists (with special outreach to the target areas) of cSLE and age appropriate, and culturally and linguistically sensitive online materials in the National Resource Center on Lupus by the Lupus Foundation of America to educate and support minority cSLE patients and their caregivers.


Goal 1: Increase the number of healthcare providers in the target areas providing an effective medical home, trained to identify, diagnose, manage, and treat cSLE.

Goal 2: Develop an American Board of Pediatrics Maintenance of Certification Part 4 Quality Improvement curriculum across the target areas to focus on early identification of cSLE; improve practice screening and assessment; anticipatory guidance; diagnose; manage; ensure adherence; and provide resources to patients with cSLE and their caregivers.

L. Nandini Moorthy, MD (MBBS), MS, FAAP, Associate Professor of Pediatrics and Chief, Pediatric Rheumatology Services at Robert Wood Johnson Medical SchoolBristol Myers Squibb Children’s Hospital serves as the Principal Investigator for the initiative. Additional partners include:

Lupus Foundation of America

Central Jersey Family Health Consortium

Statewide Parent Advocacy Network

Greater Newark Healthcare Coalition

Trenton Health Team

Harry L. Gewanter, MD

Emily von Scheven, MD, MAS (University of California, San Francisco)

Marisa-Klein Gitelman, MD, MPH (Children’s Hospital of Chicago)

Jennifer Stinson, RN-EC, PhD, CPNP (The Hospital for Sick Children, Canada)

The PAL initiative was supported by Award Number CPIMP171139 from the Office of the Assistant Secretary of Health (OASH). Its contents are solely the responsibility of the authors and do not necessarily represent the official views of OASH.